In this video, produced independently by University Hospital Southampton (UK) and published on YouTube, John Curley reflects on his life with severe haemophilia B and how it impacted not only his life, but potentially that of his family. Watch him explain his decision-making process and experiences of the journey from eligibility assessments to the infusion, before he describes how gene therapy has changed his life.
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This European website, initiated and developed by CSL Behring, has two separate sections with the aim to provide information on haemophilia for an international audience, either to European healthcare professionals or to the general public.*
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VIDEO
Gene Therapy From The Patient Perspective: John Curley's experience
In this video produced independently by University Hospital Southampton (UK) and published on YouTube, John Curley, who was born in the UK with severe haemophilia B, shares his experience of taking part in a gene therapy trial.
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Educational gene therapy series - EHConversations
The European Haemophilia Consortium has launched a five-part series of videos for patients and the general public to help them gain clarity on key topics concerning gene therapy in haemophilia.
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WFH: Shared Decision Making Tool
The World Federation of Hemophilia (WFH) Shared Decision Making (SDM) Tool for haemophilia treatment is designed to facilitate discussions between people with haemophilia and their healthcare team.